Donor Search / Knochenmarkspendersuche

Dear all,

the e-mail attached below that I received passed - among many others - also 
through your hands.

According to my experience it is almost certainly a HOAX since very similar 
ones have been on the net before. A patient who, after 8 years of leukemia 
and an unsuccessful search for a donor, still believes that a stem cell 
transplant depends on ABO and Rh blood groups probably does not exist. (By 
the way, it also not a matter of "bone tissue", but of "bone marrow" or 
"blood stem cells" - this, however, is only due to a translation error.) 

In any case, this e-mail creates lots of confusion without the least chance 
to support a specific patient. Nor will there be a benefit for the overall 
patient community since donor recruitment through the web is not feasible 
in this form and since it ends up wasting the time of people really working 
for patients.

It is particularly disappointing that a government institution (bmsg.gv.at) 
responsible for health care uncritically forwarded this information, 
apparently in an early phase. The promulgation of this mail seems even more 
strange since competent references on the web are quoted there.

Good advice is accessible in German through our web-site (www.zkrd.de) and 
in English and some other languages through www.bmdw.org and many sites 
accessible through links from there.

And, of course, any patient in need would be welcome to contact our 
organisation or me personally.

Best regards

Carlheinz Mueller

Dr. Carlheinz Mueller             German Ntl Bone Marrow Donor Registry 
Medical Director                  Zentrales Knochenmarkspender-Register
email: carlheinz.mueller@zkrd.de  fuer die Bundesrepublik Deutschland
Tel:   +49-731-1507-10, Fax: -50  ZKRD gGmbH, P.O.B. 4244, D-89032 Ulm

======================================================================

----- Original Message ----- 
From: Cornelius Loeliger 
To: registry@zkrd.de 
Sent: Thursday, July 06, 2000 5:37 PM
Subject: Fw: urgent call for a bone-tissue donation for a leukemia   BONE 
MARROW DONORS WORLDWIDE

   http://www.bmdw.org/ > 
 kind regards and try to distribute this message world-wide. its a life   
and death issue

 arno tausch

> > ----------
> > Von: Rubisch, Max
> > Gesendet: Donnerstag, 29. Juni 2000 11:48
> > An: .BMSG.Zentralstelle.Alle
> > Betreff: Knochenmarkspende
> > 
> > Bitte diesen Aufruf weiter verbreiten:
> > 
> > 
> >  Ich bin vor 8 Jahren an Leukaemie erkrankt und
> >  besitze die seltene Blutgruppe "AB rh-neg"!!!
> >  Bis jetzt ist noch kein geeigneter Spender fur
> >  mich gefunden worden, wie auch fur viele andere Patienten. Ich
> >  hoffe DU kannst mir das geben, was ich so DRINGEND und      > >
> >  SCHNELL benötige!

> > TIME IS FLEETING...ICH WILL LEBEN!!! GIB MIR EINE CHANCE !!
> > 
> > Melde Dich bitte bei einer Knochenmarkspendezentrale in Deiner >>  Nähe 
>und ass Dich in die weltweite Spender-Datei
> > aufnehmen. Du gibst damit nicht nur mir die Hoffnung auf Leben! Hier > 
>> findest Du genauere Informationen, wie DU mir und anderen  
> > Patienten helfen kannst!!!

> > OESTERREICHISCHE KNOCHENMARKSPENDERZENTRALE
> > http://www.leukaemie.org/
> > BONE MARROW DONORS WORLDWIDE
> > http://www.bmdw.org/
> > Bei Fragen, schreib bitte an
> > Divine-Tatyana@mail.comtel.co.at
> > oder ruf an unter der INFO-HOTLINE: ++43-1-1588
> > DANKE!!!!!
> > 
> > Tatyana
> > Bitte leite diese e-mail an ALL DEINE FREUNDE UND
> > BEKANNTEN weiter, es
> > ist wirklich meine letzte Hoffnung!!!
> > Please forward this e-mail to ALL YOUR FRIENDS!
> > It's my last chance!!!
> > Attention to List- & Mailadmins: Please help going
> > on this e-mail!!!
> >